Information on Li Fraumeni Syndrome

Li Fraumeni syndrome is rare, geneticLFS has an autosomal dominant inheritance
predisposition to several cancers, caused by apattern; therefore, the genetic predisposition for
variation in the p53 tumor suppressor gene. Thecancer affects males and females equally.
cancers most frequently linked with Li-FraumeniApproximately 5-10 cases of squashy tissue
syndrome include breast cancer, a form of bonesarcoma arise per 1 million children younger than
cancer called osteosarcoma, and cancers of soft15 years in United States. Li Fraumeni syndrome
tissues (such as muscle) called soft tissuehas been of large importance to the
sarcomas. Other cancers commonly seen in thisunderstanding of the genetics and molecular
syndrome include brain tumors, cancers ofbiology of cancer. Treatment in Li Fraumeni
blood-forming tissues (leukemias), and a cancersyndrome is determined by the type of cancer
called adrenocortical carcinoma that affects theinvolved and may include surgery, chemotherapy
outer layer of the adrenal glands (smallor radiotherapy. Genetic counseling and genetic
hormone-producing glands on top of each kidney).testing are used to confirm that somebody has
Several other types of cancer also arise morethis gene mutation.
often in people with Li-Fraumeni syndrome. AGenetic counseling is the process of providing
germ line mutation of the checkpoint kinase geneindividuals and families with information on the
CHK2 may be a predisposing factor in somenature, inheritance, and implications of genetic
kindred that do not have TP53 mutations. Otherdisorders to help them make informed medical
risk factors that may significantly contribute toand personal decisions. Urgent TP53 mutation
cancer formation have not been identified. A veryscreening is indicated for young onset breast
similar condition called Li-Fraumeni-like syndromecancer at fewer than thirty in individuals in families
shares many of the features of classicwith LFL or for breast cancer usually at fewer
Li-Fraumeni syndrome. Both conditions significantlythan forty for those in a family known to be
enlarge the chances of developing multiple cancersaffected by classical Li Fraumeni syndrome. This
beginning in childhood; however, the pattern ofscreening will help to determine if surgery rather
specific cancers seen in affected family membersthan radiotherapy should be used in the breast
is different.cancer treatment.